It has been 10 years since my son was diagnosed with autism at the age of three.
Back in those days, you got your diagnosis and you were sent on your way to deal with it. Very little information regarding treatment, agencies, education or help of any kind was provided. It was pretty much a “Yes, your son has autism… don’t hit yourself with the door on the way out” kind of an approach.
I didn’t even know where to get started. Keep in mind – this was long before social media. Finding autism support and connecting with other families was not a click away. Even in those early days, I learned quickly that my very best resource was other parents. I stand by that today. And with so many kids affected, there are more and more parents with experience that you can turn to. For example:
- Other Moms. You can find moms everywhere. School is a great place to start. If you can find moms with a child on the spectrum who are attending the school your child will be attending, connect with them. They can give you the ins and outs of the special education resources available, how to negotiate support for your child, which teachers are best to deal with and basically how to work the system in the best possible way for your child. Going to school is a big move for our kids (and us!) so connecting with school moms prior to school enrollment is key.
- Support groups. I wandered into an autism support group and truly found my people. But you have to find the right group. Some groups are for parents to share in their concerns and maybe have a little cry and get support that way. My support group suited me because we were a group about action. The facilitator was fierce – we were all there because we wanted the best outcomes for our kids and we left with actual tasks to report back on at the next meeting. There was no “There, there, everything will be OK.” And that was fine with me. Make sure your autism support group has the same goals as you do to get the most out of it.
- Online groups. There are countless Facebook groups, Yahoo groups and online communities. What I would have done for that resource 10 years ago! These groups are a great place to have discussions, ask questions and get answers. And who isn’t blogging these days? There are amazing blogs written by parents of children with autism who share their journeys.
- Find some you connect with and you have instant community.
You don’t have to do this alone. We are here waiting to help you. Find us.
ECHOage Guest Blogger – Julie Cole
You spoke Ethan, and your family and friends listened, and took action. They rallied around and helped you to support a cause near and dear to your heart. A community united makes for a powerful and memorable birthday party.
In his own words, Ethan shares his passion for helping to find the missing pieces of the Autistic puzzle…
“I chose to support Autism Speaks because my uncle Matt, who is one of my best friends was born with Autism. So many kids are born with Autism and I want to help Dr.’s find out why and find a cure. This was the best party of my life. All kids should give to a charity. It felt so good to raise $450.00 and I love my electric scooter!”
Ethan, at nine years of age, you have already made contributions that will last a lifetime. A loving nephew, a young leader and a creative soul.
The beat goes on thanks to you and your generous spirit.
Enjoy your electric scooter and a giant 9th Happy Birthday to you, Ethan!